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AIMS Public Health

2024, Volume 11, Issue 4: 1198-1222. doi: 10.3934/publichealth.2024062
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Stories of taking part in Everyday Life Rehabilitation - A narrative inquiry of residents with serious mental illness and their recovery pathway

  • Department of Epidemiology and Global Health, Umeå University, Umeå, Sweden
  • Received: 30 April 2024 Revised: 20 June 2024 Accepted: 05 July 2024 Published: 13 December 2024

  • Context and purpose 

    Persons enduring serious mental illness (SMI) and living in supported housing facilities often receive inadequate care, which can negatively impact their health outcomes. To address these challenges, it is crucial to prioritize interventions that promote personal recovery and address the unique needs of this group. When developing effective, equitable, and relevant interventions, it is essential to consider the experiences of persons with an SMI. By incorporating their perspectives, we can enhance the understanding, and thereby, the design and implementation of activity- and recovery-oriented interventions that promote health, quality of life, and social connectedness in this vulnerable population. Thus, the aim of this study is to explore the stories of participants partaking in Everyday Life Rehabilitation and how they make sense of their engagements in everyday life activities and their recovery processes.

    Methods 

    Applying a narrative analysis, this study explores the stories of seven individuals with an SMI residing in Swedish supported housing facilities, participating in the Everyday Life Rehabilitation (ELR) program during six months, and how they retrospectively make meaning of their engagement in everyday life activities and recovery processes.

    Findings 

    The participants' stories about their rehabilitation and personal recovery pathways elucidate how the inherent power of the activity, as well as the support the participants received to get started and succeed, had a significant impact on their self-identity, confidence, motivation, mattering, life prospects, and vitality. The participants valued the transparent steps along the process, weekly meetings, the signals, beliefs, and feedback communicated throughout, and the persistent, adaptive, and yet supporting approach in their personal progress.

    Significance 

    This study underscores the need for interventions that prioritize meaningful activities and are sensitive to the complexity of the personal recovery process, especially in supported housing facilities. Future research should further explore effective strategies and mechanisms to promote personal recovery and to reduce the stigma associated with SMI.

    Citation: Rosaline Bezerra Aguiar, Maria Lindström. Stories of taking part in Everyday Life Rehabilitation - A narrative inquiry of residents with serious mental illness and their recovery pathway[J]. AIMS Public Health, 2024, 11(4): 1198-1222. doi: 10.3934/publichealth.2024062

    Related Papers:

  • Context and purpose 

    Persons enduring serious mental illness (SMI) and living in supported housing facilities often receive inadequate care, which can negatively impact their health outcomes. To address these challenges, it is crucial to prioritize interventions that promote personal recovery and address the unique needs of this group. When developing effective, equitable, and relevant interventions, it is essential to consider the experiences of persons with an SMI. By incorporating their perspectives, we can enhance the understanding, and thereby, the design and implementation of activity- and recovery-oriented interventions that promote health, quality of life, and social connectedness in this vulnerable population. Thus, the aim of this study is to explore the stories of participants partaking in Everyday Life Rehabilitation and how they make sense of their engagements in everyday life activities and their recovery processes.

    Methods 

    Applying a narrative analysis, this study explores the stories of seven individuals with an SMI residing in Swedish supported housing facilities, participating in the Everyday Life Rehabilitation (ELR) program during six months, and how they retrospectively make meaning of their engagement in everyday life activities and recovery processes.

    Findings 

    The participants' stories about their rehabilitation and personal recovery pathways elucidate how the inherent power of the activity, as well as the support the participants received to get started and succeed, had a significant impact on their self-identity, confidence, motivation, mattering, life prospects, and vitality. The participants valued the transparent steps along the process, weekly meetings, the signals, beliefs, and feedback communicated throughout, and the persistent, adaptive, and yet supporting approach in their personal progress.

    Significance 

    This study underscores the need for interventions that prioritize meaningful activities and are sensitive to the complexity of the personal recovery process, especially in supported housing facilities. Future research should further explore effective strategies and mechanisms to promote personal recovery and to reduce the stigma associated with SMI.


    Abbreviations

    CHIME

    Connectedness, Hope, Identity, Meaning, and Empowerment

         ELR

    Everyday Life Rehabilitation

         HS

    Housing staff

         OT

    Occupational Therapist

         PT

    Physiotherapist

         RCT

    Randomized Controlled Trial

         SDGs

    Sustainable Development Goals

         SMI

    Serious mental illness

         STAX-SA

    Simple Taxonomy for Supported Accommodation

         YLDs

    Years lived with disability
    加载中

    Acknowledgments


    This study is part of a larger trial, funded by the Swedish Research Council for Health, Working Life and Welfare (FORTE 2021–01391). The funder does not have a role in study design, analyses, manuscript, nor in the decision to publish.
    Our heartfelt gratitude goes to all the participants who generously shared their stories, contributing to increased knowledge and making this study possible.

    Authors' contribution


    ML was the PI for the entire intervention project, of which this sub-study was a part. Both authors conducted narrative interviews/conversations with participants. The narrative analysis was carried out both in parallel and in critical reflection together, to find the best interpretation, theoretical illumination, and projection in accordance with the data. RBA drafted the main parts of the manuscript, while ML wrote specific parts and suggested revisions.

    Conflict of interest


    Both authors declare no conflict of financial or commercial interest in this paper. However we want to be transparent about the second author (ML) being PI of the full project and the developer of Everyday Life Rehabilitation.

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